Our first pilot was a success. Now we want to expand!
We are seeking a Virtual Coach. The coach will recruit and match new peer support specialists and clients. They will help peer support specialists and clients fill out their applications online. They will help train peer support specialists online. They will help peer support specialists set up and hold client meetings. They will make sure all paperwork—surveys, timesheets, etc.—is completed on time.
The coach could be a staff member from an organization such as a local ARC, LIDDA, behavioral health service center, managed care provider, etc. Our project would support a part of that staff member’s salary. Or this person could be independent. They could be an experienced self-advocacy chapter leader, service provider, even a parent or caregiver for people with IDD.
The person must have experience helping people with IDD plan the lives they want and get the services they need. They must have great technology and mentoring skills. They must very organized so that data is collected on time and with accuracy.
This person will work on the project for 10 months, from July 2021 through April 2022. The job should take about 20 hours per week. Some months will have more hours, some fewer. This is a contract position. Please contact us if you are interested or if your organization wants to get involved.
This is an exciting project with a promising future. A successful pilot may be expanded in the 2022-2023 project year. Get involved today!
P.S.—We will be recruiting for new peer support specialists and clients in the next few months. Stay tuned for that announcement!
Our team will be holding listening sessions to learn more about important issues and concerns related to sexual assault of people with IDD. What we learn will help us develop resources and tools to prevent sexual assault and to support people if it does happen to them. We’ll have five groups:
People with IDD (who identify as survivors of sexual assault)
People with IDD (who do not identify as survivors)
First responders including law enforcement (who have CIT or Pathways to Justice training), EMS, and emergency room nurses with experience working with people with IDD
Service coordinators (e.g., LIDDA, ARC, SSLC, Day Hab, etc.)
Each group will have four people. They will meet two times over Zoom for 1.5 hours each time. Participants will receive $75/session. The first session will be in late June/early July. The second session will be in August.
We want diversity within these groups, including people with differing races and ethnicities, languages, disabilities, gender, gender identification, and sexual orientation.
All participants must be at least 18 years old and willing to discuss these sometimes-difficult topics. We are working with SAFE Austin to ensure all participants have control and choice within the sessions. We will also include a therapist with trauma-informed training in the sessions.
If you or anyone you know is interested in participating, please contact Alisa Miller no later than May 21. Let her know in which one of the five groups you want to join. Alisa will follow up to get more information.
“The program you’re building will give us the many hands we need to make this work…lighter for those struggling under the system and fighting to improve it.”
Alex Bradley served on our Complex Mental Health Survey Workgroup. Their job was to help make our needs assessment survey easier to read and answer. Alex lives in a rural community outside of the Dallas-Fort Worth Metroplex. She has Aspergers, ADHD, Auditory Processing Disorder, C-PTSD, and chronic depression. She also has several chronic, invisible, rare diseases. She is the President of The Self-Determination Group and a member of the Board of Texas Advocates. Alex enjoys reading, watching YouTube videos, and playing PC video games. Before the pandemic, when she had the time and space, she also enjoyed quilting, sewing, and swing dancing.
Q: What are some of your hopes for the future?
A: Short term goals are finding a clean, safe place to live when my lease is up, getting more hours at work, getting better medical treatment now that I’ve finally gotten health insurance. It’s going to take an incredible amount of work and luck, but I hope in the next few years I’ll be able to go back to grad school. I’ve always wanted to be a scientist.
Q: What are some challenges you have as a person with both a disability and mental health conditions?
A: The social safety net in Texas is nearly non-existent. I usually have several days a month where I can’t get my psych meds that I spend in withdrawal. It’s bad enough that my coworkers have a saying that “25% of an Alex is better than no Alex!”
Q: What was your favorite thing about working on this project?
A: It was honestly really wonderful to see how much you all cared about our perspectives and experiences, and how you really listened and integrated the information we gave you to make a better survey. Not only does the finished product make sense to neurodiverse people, written in literal language we can all understand without any double meanings, but the way the answers are structured will give the scientific community meaningful data about our struggles so they can figure out how to really help us.
Q: Did you feel you were listened to? How do you feel your contribution will improve this project/topic?
A: I very much felt listened to. I think personally my most effective contributions were giving the autistic perspective and giving feedback on how changing the phrasing and order of the questions in the mental health survey is going to affect how people answer them so that the researcher will have better quality data at the end.
Q: How do you think this project will help other self-advocates?
A: Mentorship is an extremely important aspect of advocacy work, for any cause. It gives people community, a connection to the otherwise untaught history of the movement, an understanding that progress was made before and can be made again. Specifically with the disability movement, it shows you all the ways you can advocate for yourself and others despite your individual setbacks. You can learn how to get your message across, how to speak to power, even when you’re nonverbal.
Q: Is there anything else you want to tell us about the project and your work?
A: I’m really glad you guys decided to do this work in Texas, specifically. Our state has a lot of work that needs to be done before disabled people here are treated equitably in society, especially compared to other US states. The program you’re building will give us the many hands we need to make this work not just lighter for those struggling under the system and fighting to improve it, but in some cases will make the work just possible. One of the reasons our voices are ignored is because we aren’t effectively speaking together, and I think your program will help immensely with that.
We are hard at work in this first year of our project. We’re already learning so much about this important topic. We want to share some of our early findings with you.
Prevention Focuses on Sexuality Education
Sexuality Education is used most often to prevent sexual assault of people with IDD. These programs might focus on healthy sexuality, understanding boundaries, and learning how to keep our bodies safe. These programs are important and can be very helpful. But they don’t focus on the perpetrators–the people doing the assaults. And often, people shy away from sexuality issues. This puts people with IDD more at risk.
Group Housing Is a Big Risk Factor
Group housing can include anything from a state supported living center (SSLC) to an informal home where roommates share space. Sexual assault happens at higher rates in group housing. But assaults are less likely to be reported. When they are reported, staff are less likely to involve police. This often leads to a cycle that keeps the perpetrators safe and continuing to commit assaults/abuse.
Adjudication and Survivor Support Get Little Attention
Most studies, programs, and resources focus on prevention and reporting. Yet, adjudication (making sure perpetrators are tried and convicted) is very important too. Abusers who do not receive consequences usually continue to assault/abuse.
Also, little is being done to support sexual assault survivors with IDD. We know that healing trauma is difficult but critical. More needs to be done to provide survivors with a clear recovery plan and the resources to make it happen.
We are excited to be able to bring light to this dark topic. We will publish our complete gap analysis framework in July of 2021. We will then begin working on resources to help fill those gaps.
Comment below to let us know what you think is most important in supporting people with IDD!
Our first group of peer support specialists was trained last month. Self-advocates from ARC Beaumont had four days of training over Zoom, including courses on:
– Talking and listening
– Being a strong self-advocate
– Helping others through peer support
These amazing self-advocates learned valuable skills like active listening, keeping conversations going, problem solving, and handling conflict. Courses were presented on Zoom using content we created in Moodle, an online learning tool.
Peer support specialists will now start providing services to clients. They will meet with clients matched to them several times a month. They will help clients:
– Explore their needs, wants, hopes and dreams.
– Set goals and make plans to reach them.
– Make decisions and solve problems as they work toward their goals.
– Find needed services to help reach their goals.
Participants were surveyed to see how they felt about the training. All parts of the training received high marks. Peer Support specialists especially liked learning how to believe in yourself and learning how to do the job of a peer support specialist. Contact us for more information about our program.